American Society of Transplantation (AST) - The AST Living Donor Community of Practice (LDCOP) provides educational materials, including toolkits and webinars for potential living donors.
American Transplant Foundation – Offers educational resources, financial assistance, and mentoring for living donors, transplant recipients, and caregivers. Registers potential living donors and assists transplant patients seeking a living donor.
Donate Life America (DLA) - Nonprofit organization that handles the National Donate Life Registry, where anyone can register to be an organ donor. In December 2021, DLA launched the National Donate Life Living Donor Registry, which facilitates nondirected living kidney donation. The program continues to expand in phases.
The registry intends to improve the referral and evaluation process at living donor programs so more transplant candidates can receive a life-saving kidney. SRTR's LDC handles long-term follow-up of living donor outcomes, while DLA focuses on connecting potential nondirected donors to a living donor program.
Donor Shield – Program that provides resources for living kidney and liver donors, including lost wage reimbursement, financial assistance for travel and dependent care, and legal services. Backed by the National Kidney Registry.
GiftWorks LLC – Organization that aims to empower living donors and organ recipients through education, support, and advocacy.
Health Resources and Services Administration (HRSA) - Organ Donation - US government source on organ donation. HRSA is part of the US Department of Health and Human Services. Both SRTR and the Organ Procurement and Transplantation Network (OPTN) are federal contracts through HRSA. The OPTN has an information page about living donation.
The Living Donation Storytelling Project – Houses video stories created by living kidney donors, recipients, and others to share living donor kidney transplant experiences and raise awareness about living donation.
Living Donors Online – An online community of living donors, potential donors, their families, and medical professionals that promotes awareness, education, and support regarding living donation.
New England Donor Services – Coordinates organ and tissue donation in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, the eastern counties of Vermont, and Bermuda. Has resources for those considering donation, living donors, and the families of donors.
The United Network of Organ Sharing (UNOS) - Transplant - Living Donation - Nonprofit organization with a variety of living donor information, from data figures to more resources.
