Additional Resources
Transplantation Organizations and Information
Cystic Fibrosis Foundation – Organization that conducts research on cystic fibrosis, and offers support for those living with it.
Liver Education Advocates – Organization that informs the public on Fatty Liver Disease, and provides support for liver transplant patients.
Lung Transplant Foundation (LTF) – Focuses on lung transplant research, as well as education and support for lung transplant recipients and their caregivers.
National Kidney Foundation (NKF) – Organization focused on kidney disease education and research, kidney transplantation, kidney patient advocacy, and more.
Oley Foundation – Fosters community, advocacy, and more for those living with home IV nutrition or tube feeding.
Student Organ Donation Advocates (SODA) – Organization that educates student populations on the importance of organ donation, and helps student become ambassadors for organ registration and donation.
Cystic Fibrosis Foundation Resources
Lung Transplant Today
Talking About a Lung Transplant
Deciding to Get Listed for a Lung Transplant
The Journey Through A Lung Transplant
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Centers Near Me
Find A Lung Transplant Center
Referral and Evaluation
Being Referred as a Candidate for Lung Transplant
Going Through an Evaluation for a Lung Transplant
What If You Aren’t Eligible for a Lung Transplant?
Planning to Pay for a Transplant
What to Do While Waiting for a Transplant: Maintaining Your Health and More
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Lung Transplant Surgery and Recovery
Coping After Recovery
Caring for Your New Lungs
Life After a Lung Transplant
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Collaborating Complex Care Needs for Cystic Fibrosis Lung Transplant Recipients
Position paper: Models of post-transplant care for individuals with cystic fibrosis
Community and Staying Connected
BreatheCon
CF Circles
CF Peer Connect
Community Voice
ResearchCon
Social Support During the Transplant Process
Reports, Workshops, and Consortium
2024 North American Cystic Fibrosis Conference (NACFC): Advanced Lung Disease and Lung Transplant Workshop
2023 Advanced Lung Disease and Lung Transplant Program Annual Report
2023 Patient Registry Annual Data Report
Cystic Fibrosis Lung Transplant Consortium
Get Help with CF Foundation Compass
National Kidney Foundation Resources
Treatment Options
Choosing A Treatment For Kidney Failure
First Steps to Transplant: Introduction to Kidney Transplant (course)
Getting a Kidney Transplant
20 Common Questions about Kidney Transplant
Treatment and Support
How Does Palliative Care Improve the Quality of Life for Kidney Patients?
Getting a Living Donor Kidney Transplant
Finding a Living Donor (course)
Hemodialysis
Home Dialysis
Peritoneal Dialysis
Stopping or not Starting Dialysis
How to Choose a Transplant Center
Referral and Evaluation
Evaluation for Kidney Transplant
First Steps to Transplant: Considering a Kidney Transplant (course)
The Transplant Evaluation
Getting Approved for Transplant Waitlist
Why Someone May Not Be Approved
Cost and Paying for a Transplant
Getting Listed
The Kidney Transplant Waitlist
First Steps to Transplant: Getting Listed for Kidney Transplant (course)
Multiple Listing for Kidney Transplant
Care Before Transplant
Treatment and Support
Staying Healthy While Waiting for a Kidney
20 Common Questions about Kidney Transplant
Care After Transplant
After Transplant (course)
After Transplant: Transplant Surgery & Recovery (course)
Life with a Kidney Transplant
Managing Your Health Post-Transplant
20 Common Questions about Kidney Transplant
Questions or Need Assistance?
NKF Peers
National Kidney Foundation: Living Kidney Donor Resources
Starting the Process of Living Kidney Donation
Becoming a Living Donor
Becoming a Living Donor (course)
How to Donate a Kidney
Understanding Living Organ Donation
Living Donor Surgery and Risks
Living Kidney Donor Evaluation
Living Donor Evaluation
Becoming a Living Donor: Living Donor Evaluation (course)
Getting Listed
First Steps to Transplant: Getting Listed for Kidney Transplant (course)
Care After Living Kidney Donation
Questions or Need Assistance?
NKF Peers
