Additional Resources
Transplantation Organizations and Information
Cystic Fibrosis Foundation – Organization that conducts research on cystic fibrosis, and offers support for those living with it.
Liver Education Advocates – Organization that educates the public on Fatty Liver Disease, and provides support for liver transplant patients.
Lung Transplant Foundation (LTF) – Focuses on lung transplant research, as well as education and support for lung transplant recipients and their caregivers.
National Kidney Foundation (NKF) – Organization that aims to get rid of preventable kidney disease, and improve the experience of kidney transplant patients.
Oley Foundation – Fosters community, advocacy, and more for those living with home IV nutrition or tube feeding.
Student Organ Donation Advocates (SODA) – Organization that educates student populations on the importance of organ donation, and helps student become ambassadors for organ registration and donation.
Cystic Fibrosis Foundation Resources
Lung Transplant Today
Talking About a Lung Transplant
Deciding When to Get Listed for a Lung Transplant
The Journey Through A Lung Transplant
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Centers Near Me
Find A Lung Transplant Center
Referral and Evaluation
Being Referred as a Candidate for Lung Transplant
Going Through an Evaluation for a Lung Transplant
What If You Aren’t Eligible for a Lung Transplant?
Planning to Pay for a Transplant
What to Do While Waiting for a Transplant: Maintaining Your Health and More
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Lung Transplant Surgery and Recovery
Coping After Recovery
Caring for Your New Lungs
Life After a Lung Transplant
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis
Collaborating Complex Care Needs for Cystic Fibrosis Lung Transplant Recipients
Position paper: Models of post-transplant care for individuals with cystic fibrosis
Community and Staying Connected
BreatheCon
CF Circles
CF Peer Connect
Community Voice
ResearchCon
Social Support During the Transplant Process
Reports, Workshops, and Consortium
2024 North American Cystic Fibrosis Conference (NACFC): Advanced Lung Disease and Lung Transplant Workshop
2023 Advanced Lung Disease and Lung Transplant Program Annual Report
2023 Patient Registry Annual Data Report
Cystic Fibrosis Lung Transplant Consortium
